We went to Kaiser at 6:30 am this morning so that Erin could have MRIs of both the brain and the neck. Erin enjoyed seeing her buddies on the staff there whom she has been seeing at least twice a year for the past 7 1/2 years.
She was supposed to see Dr. Lallana, her neuro-oncologist, for a routine semi-annual appointment this afternoon. But, when the receptionist in the MRI office called up to his office to see if he could see her earlier, she found out that he was out sick. So, Erin’s appointment to see Dr. L has been changed to next week.
The pain in the back of her neck due to the benign Desmoid tumor on her trapezius muscle has been causing a lot more pain lately, so that is why she had the new MRI on the neck now instead of waiting another 3 months. Dr. Morse, the musculo-skeletal oncologist in Orthopedics at Kaiser in Oakland called me in the late afternoon. He had read the neck scan and said that the Desmoid tumor had grown about a cm (about 0.4 inch) in all directions. 3 months ago it was about 2.3 inches by 1 inch.
Again, the possible treatments are surgery which has a high recurrence rate, hormone treatment with tamoxifen, or radiation treatment which long term can actually induce small cancers. Right now Erin wants to do nothing and will probably see what the change is in another 3 months.
After the MRIs, we stopped by JimBoy Tacos to get a breakfast burrito, but they weren’t open yet! We had been up for 3 hours!