Monthly Archives: August 2013
Paco has been complaining about his feet hurting so this evening we all went out to the Vacaville outlets to look for new shoes for school. Both Paco and Tommy found some new ones at the Nike outlet. Tommy was very excited and, as four year olds tend to do, he ran back and forth in his new shoes to see how fast they were.
He had to get bright green trim to match the shoes Paco had already chosen.
Erin took these pictures of their feet as we were getting back into the car.
My parents were a huge help with the kids this weekend as I was out of town and Louisa had plans as well. Aba Judy stayed over both nights. We are all very lucky to have them so close by.
I forgot to mention in yesterday’s blog that Dr. Clarke thought that Erin getting physical and speech therapy was a very good idea. She said: “If you don’t use it, you will lose it.” She also thought that it was good that Erin has found a college girl to take Erin on errands once a week.
All up and down Hwy 80 there were signs that the Bay Bridge would be closed Aug. 28 – Sept. 2. I guess this is in coordination with the new span opening.
Clark and I took Erin to UCSF (the University of California at San Francisco) Medical Center for an appointment with Dr. Jennifer Clarke today. Dr. Clarke was one of the principal investigators of the trial in which Erin participated for a year after diagnosis. Erin wanted Dr. Clarke’s input on Erin’s current condition. Dr. C is about 2 years younger than Erin!
Dr. Clarke said that Erin’s current MRI of July 25th looked like that of someone who has had a brain injury, like a serious stroke. She sees no active tumor at this time. She had thought that the MRIs of August and Oct 2011, had looked like the tumor was growing, but apparently that was not so.
I asked why Erin deteriorated so rapidly between Aug. 2011 when she had that seizure, and during the next 6 months through the first couple of months of hospice. Erin lost her right field of vision, lost her ability to write clearly on the computer, and fell frequently. Dr. Clarke said that radiation damage can take place for several years after treatment, and it could have invaded the optic track, rather than a tumor invading it, and radiation could have caused the other problems.
Dr. Clarke doesn’t think the 2 small areas of enhancement, which the recent MRI showed on the right side of the brain, are tumor cells. She thinks that they look more like radiation damage.
Erin also visited with Margaretta, one of the nurses on the project. Eirin was pleased to hear that Margaretta follows the blog. Both she and Dr. Clarke thought that Erin looked good. Dr. Clarke thought Erin was doing much better than when she last saw Erin in Oct. 2011.
On the way home we went to Spenger’s in Berkeley for a late fish lunch. Then we stopped at the outlets in Vacaville where I got Erin an early birthday present at White House/Black Market and also bought a little present for Barbara.