An Unbelievable MRI

Steve reporting:

Erin had an MRI last week, her first in about 18 months.

Well, the oddest thing is that the large mass that was apparently a recurrence of her GBM that sent her downhill and into hospice last year is, well, gone. She just has a space in her brain.

The assumption is that it wasn’t a recurrence after all but rather radiation necrosis (like scar tissue). This would explain why she suddenly stopped getting worse.

There were two odd small (approx 5mm) areas of enhancement visible on the right side of her brain where there had previously been no damage… But it is unclear what these are. And, since it has been so long since her last scan we don’t know how long they have been there… it could be more scarring.

As you may recall, when she had her second surgery in June of 2011 the pathology also indicated necrosis but with a few small cells that appeared malignant. Two months later another scan showed a 4 1/2 cm mass which was not removed. At the time the doctors assumed it was cancer because of the speed with which it appeared to grow and the affects on her speech, vision, and motor skills. It now appears that there may not have been more cancer after all. Or, perhaps it was but her immune system fought it off. We may never know.

From another doctor who had treated Erin a few years ago:

"I agree with the report from the neuroradiologist that there is no evidence of recurrent disease, but a small area of enhancement likely due to treatment effect."

11 thoughts on “An Unbelievable MRI

  1. Kathy July 29, 2013 at 23:39 Reply


  2. Liliane Kirchhoff July 30, 2013 at 08:31 Reply

    This is unbelievably good news. How wonderful for all of you .
    Much love. Liliane

  3. Patricia zavadil July 30, 2013 at 09:06 Reply

    What a blessing! Now all energy can focus on the future! Patricia

  4. Tom Z July 30, 2013 at 11:17 Reply

    That is absolutely amazing!
    As I recall, Erin described that large mass to us as the “parking space” in her brain. I’m happy to hear that it’s vacant again!

  5. Brian Dierksheide July 30, 2013 at 16:25 Reply

    Fantastic news!

  6. Madelynn July 30, 2013 at 18:16 Reply

    Truly a miracle. So happy for you Erin and your whole family. You are one
    remarkable strong lady
    Madelynn Burton

  7. Joan July 30, 2013 at 18:22 Reply

    What wonderful news! I have read a lot about retraining the brain after a stroke to use other pathways to learn how to use an arm or leg again. Would this be possible for you, Erin? It seems like a lot of new opportunities might be opened for you now. We’ll keep praying!

  8. Raquel July 30, 2013 at 19:38 Reply

    Excellent news! I read you blog every day Erin .. I’m so happy for you! 🙂

  9. Lucy Brown August 4, 2013 at 10:57 Reply

    Miracles do happen!

    Sent from my iPhone

  10. Laurie Carney August 8, 2013 at 16:50 Reply

    Just catching up on all your news – this is incredible! Hugs, L

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