cannot understand

Steve here:

Erin has been incredibly tired the past few days and she isn’t sure why.  She has only been awake a few hours per day this weekend and was totally exhausted when she was up.  Her speaking ability still seems about the same as before, but her fatigue is such that she is having trouble standing and walking like she did just a few days ago.  Yesterday she tried to walk around the house a bit for exercise, but was tired quickly.

Today was our 12th anniversary.  Paco had a baseball game but she was too tired to attend.  We did manage to all go to dinner together afterward, but came quickly home and to bed.  Both Paco and Tommy were wiped out… they played a lot today outside plus attended the baseball game late in the afternoon.


2 thoughts on “cannot understand

  1. Margaretta Page May 20, 2013 at 14:25 Reply

    Erin and Steve, the nurses and I here at UCSF were thinking about you today and wondering how you are doing. Your notes say alot. The pictures of the kids are beautiful. I can’t believe how much they have grown. They are such handsome little guys and so full of life. You are all in are hearts as you continue the journey. – Margaretta Page, RN @ UCSF

  2. Scott Holloway May 27, 2013 at 19:28 Reply

    Steve and Erin-

    I’ve never met you guys, but I found out about Erin’s blog from The Liz Army. I’m a fellow brain tumor patient, and have gone looking online for others that are like me, which has lead me to Erin and Liz, among others. My tumor was a grade II oligoastrocytoma, so not as bad as Erin’s. I think the way she has fought and rebounded back from hospice is amazing and inspirational. That’s what she is to me. But to her two sons she is just “Mom”. I hope she can stay here in that role for a long time to come. Bless your precious family.

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