Erin saw Dr. Adams today

Erin had an appt with her oncologist today here in Sacramento.  After talking to her for a while, he said, “You look amazingly stable.” He said that she was talking pretty well today, much better than at times a few months ago.

She said that she has pain ofabout a 5 on a scale of 1 to 10. She had a bad headache later this afternoon, but most of the pain is in her legs.

Dr. Adams said that she does not show the characteristics of a long term survivor, who has no recurrence. Rather, Erin’s immune system seems to be helping to hold her cancer stable. He said that there are neurological diseases like MS or a stoke giving brain damage similar to Erin’s. But, you don’t usually see this in cancer patients.

Maybe eventually he will order an MRI out of curiosity, but the treatment wouldn’t be any different.

Barbara

2 thoughts on “Erin saw Dr. Adams today

  1. Scott Holloway May 14, 2013 at 20:40 Reply

    Erin, I’m so glad to know you’re doing this well. You are an inspiration to all glioblastoma patients. Best of all, you are having a good quality of life, and spending precious time with your kids. Keep it up. Your brain tumor buddy in Indiana-

  2. lucy brown May 30, 2013 at 01:37 Reply

    I still think all the love, the most powerful healing in the cosmos, has erin in a place of good energy pouring into her brain.. Every thought has a reaction, and erin can and has long ago shown there is only one of her and she has us all proud of her.

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