There are prophets. I have lead by a not challenge. And sorry trying to write but cannot. P is a lot…challenging. He is 8.
Today Cindy and family bring our kids. This was a good work or Steve and M. were wonderful.
The kids are fighting as I write. I could see that is bad, but…it’s still love.
I should trite about the list of people who do such. But was tired.
That said, there are somethings about. A. was full of warning. But there was a bit of things that made me.
1) I am talking. Still talk. I am string with word. I must less, but I can speak that writing.
2) Slow the right side is getting 6-8 weeks is sign.
3) I can walk. Not much, but I can. On a good, I can
4) No of has that Dr. A live, his peatent, have lifed. We are the other patient, are not mind. Do not, there other have a horrible life. But Glioblastoma multiform.
With one year…one.
Please, I am very tired. But I am alive.
For the 3rd week in a row, Erin has gone to Davis. Cindy picked her up about 6:15 this evening, and will bring Erin back Monday morning about 9 am. Erin took off with 2 wheelchairs and 2 bags of Trader Joe’s groceries, which she had purchased this morning with Shannon.
This morning Shannon came and took Erin to run errands and have lunch. Erin came home exhuasted, and too tired to talk to Barbara, the volunteer, who was on the phone. Barbara was home from her 4 week bicycle tour of France. Barbara had heard that Erin had gone off of hospice. But, Barbara considers herself a friend and neighbor, so she is planning to stop buy and take Erin around the block next week.
Barbara uttered the same words as Dr. Adams: enjoy each day and don’t plan too far ahead.
Erin saw Dr. Adams, her oncologist, this afternoon for the first time since July 31st. He had been out for 4 weeks with an injured knee and is still in a boot type cast and has to keep his leg elevated. So, we met in his office rather than an exam room.
He thought Erin looked the same, but said that he cannot predict what will happen. Uncertainty is difficult to deal with and we just have to deal with it day by day. He warned not to make long term plans.
She can get a flu shot, but people with a cold or flu should not visit her. She had lost 5 pounds in the 8 weeks since she had seen him.
Steve arrived for the last 5 minutes of the appt. (Dr. Adams always runs about 20 minutes early.) Steve asked about an MRI. Dr. Adams didn’t recommend having one. At this stage, it doesn’t tell you anything. He said he visits Erin for social purposes. She is post-modern medicine. Chemotherapy failed, and now she is “post-scientific”, or as they say in med school, “post-modern”. It is back to old-fashioned pre-chemo day medicine.
He warned: “Dont’ let a day go by that you don’t make the most of.”
Cindy brought Erin back to Sacramento this morning. Then Erin got caught up on sleep. We actually left her alone this afternoon for a couple of hours while we went to a Memorial service for a colleague. She managed fine.