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Erin has had an open sore at her waistline for a couple of weeks. About 10 days ago, when we were at the Morse Ave Kaiser, I asked Dr. Adams assistant if Dr. A could refer Erin to the wound nurse whom we had used 2 years ago when Erin was on hospice. The nurse was at the Kaiser Point West office 3 miles from here.
The assistant came back with an appt for 9 days later, at the Wound Clinic at Kaiser on Eureka Rd in Roseville, 19 miles from here, which I had never been to before. Kaiser is openening a wound clinic next month at Morse Ave, but for now Roseville is the only one.
In the meantime I have been treating the sore with terbinafine hydrochloride which I thought was what Erin had been given for sores 2 years ago. (It had been given to her for a rash.) On Tuesday when I saw my own doctor for a routine checkup, he told me that terbinafine hydrochloride was an anti-fungal cream for athlete’s foot or rashes! Instead I should use an antibiotic cream such as neosporin which I did use Tuesday night.
Yesterday morning, we saw the wound nurse in Roseville. She thought that the sore looked great. She said that since December, neosporin is no longer recommended for open wounds! It attracts drug resistant bacteria. The nurse used silver nitrate on the sore, then covered it with a 1 inch square of silver PolyMem, followed by gauze and tape. She gave us s sheet of PolyMem to use. (For exciting reading, go to polymem.com)
The nurse didn’t think that it was a bedsore or pressure sore, which occurs near a bone. Erin’s was probably due to poking against something when she fell. There was about a 4 inch square black and blue bruise area around it which has almost disappeared.
Afterwards, we went to lunch at A Slice of Goodness, a small hole-in-the wall on Douglas Blvd in Roseville, which has good sandwiches and homemade pies which my friends in Roseville have served at social bridge. Trade Joe’s was nearby, so shopping there completed our outing.
Erin’s brace was making an indent mark on the top of her ankle, and I never could figure out how to wrap the velcro strap, so we went to Integral Orthotics today. Greg, Larry’a assistant, helped us. I had been wrapping the strap directly around the ankle and this was what caused the mark. He showed us how to form the strap in a figure 8. He also cut a little off the bottom of the boot.
Erin had the lab tests this afternoon. She has received email notification of 3 series of results that are all within normal limits. We suspect that there may be one more result that has not been reported yet. There was no mention of Keppra in the results so far. Or maybe it is supposed to have an affect on one of the readings. … will have to ask the doctor next week if we don’t get any more results.
Erin is walking more yesterday and today and is even trying wearing her brace to bed. Colleen has been in and out doing laundry, (her washing machine isn’t working), and that always puts Erin in a good mood.
Erin says today has been one of her best vision days in months. She has kept her prism glasses on all day even though they aren’t good for distance. A friend of mine has a similar problem of double vision and needs prism glasses and says that she get nauseous when she doesn’t wear them.
My sister Joan just read tonight’s blog and sent me the following:
” I just read your note about the visit to the neuro-oncologist and the mention of Keppra. I looked it up in Wikipedia and was surprised about the side effects:
“Levetiracetam (Keppra) is generally well tolerated, but may cause drowsiness, weakness, unsteady gait, fatigue, coordination problems, headache, pain, forgetfulness, anxiety, irritability or agitation, dizziness, mood changes, nervousness, loss of appetite, vomiting, diarrhea, throat pain, constipation, and changes in skin pigmentation.
“Serious side effects may include depression, hallucinations, suicidal thoughts, seizures that are worse or different, fever, sore throat, signs of infection, double vision, itching, rash, swelling of the face. A study published in 2005 suggests that the addition of pyridoxine (vitamin B6) may curtail some of the psychiatric symptoms.“
“Erin has several of the side effects, e.g. double vision, vomiting and fatigue. I wonder if they are associated with Keppra?”
Note from Barbara:
Erin was prescribed Keppra to prevent seizures as a matter of routine following brain surgery. It is amazing the number of side effects that it could have. Thank you, Joan, for cluing us in!
Erin saw Dr. Lallana, the neuro-oncologoist today for a 45 minute visit. Yesterday’s visit with Dr. Adams also lasted 45 minutess. When Lallana walked into the exam room, he joked that Erin really wasn’t supposed to be here. He said that he and Dr. Adams were both wrong about thinking that the tumor had recurred in the Fall of 2011. (USCF also thought that it had recurred.)
Lallana said that the new MRI was actually better than the one 8 months ago. He also thought that Erin was speaking much better than when he last saw her 8 months ago. He examined her for the double vision, and really didn’t have an explanation for it or the nausea. Erin has always had eyes that focus at 2 different levels, but normally glasses take care of the needed correction. He said that maybe she has been tired and unable to correct for it. He also said that the long term affects of radiation can lead to premature aging.
He prescribed some blood tests which she will get tomorrow. She had forgotten to take her Keppra this morning and one of the tests involves the Keppra level, so he wanted her to wait until tomorrow.
He volunteered to have her as his patient when Dr. Adams retires, and Erin was thrilled with the idea.
Shannon was going to take Erin to a tumor support group at UC Med Center tonight, but before Shannon got here, Erin became very nauseous, so they didn’t go. Shannon stayed for several hours helping Erin with deleting old advertizing emails, etc. … such a good friend.