Erin and I met with Dr. Adams today as she does every 2 weeks now before the Irinotecan-Avastin infusion (which will be tomorrow). Adams pointed out that the MR (as he calls it) showed decreased mass effect and less enhancement, but that the Diffusion Restriction was worse. I have been trying unsuccessfully to get a definition of Diffusion Restriction.
He says that her prognosis is bad and that she should ask UCSF about further trials for when the Irinotecan stops working – and he said that it will stop working – could be a week, a month, or a year. This really upset Erin and she has been upset all day.
He thinks that her clinical presentation is worse than it was a month ago (speech and loss of the visual field) and he goes more by that than by MRIs.
L, a friend of Erin’s from high school came by and took Erin to Raley’s to grocery shop about 4pm. They met up recently in Davis because L has children in the same school as Erin’s. Coincidentally, L’s mother died from a glioblastoma when they were juniors in high school.